HEAVY METAL, ROCK CHICK

Third times a charm.... that's what they say, right?  I've written this blog post now 3 times, and each time the browser shuts down and I lose all my writing.  If this makes it up, just know you're incredibly special/lucky to get this update at all! ha!

So last update was a few weeks ago, and since then we've had more test results.  Starting off with the skin, my docs were interested to see if the Sweet's was gone, and had morphed into something different because of how different things look now.  So we sent off all my biopsies and blood work to THE top dermatologist in the country for his opinions.  After he reviewed it all, he believes each sample does in fact have signs of Sweet's Syndrome, so that's likely still the diagnosis.

Now, it may be true, BUT if you saw the difference between how I looked a few months ago and today, you'd be amazed.  Oh, let me show you! (The recent photo is me, on no medications, just my healing regime full of nutritious foods, supplements, mental clarity, and more!)

Ok, so here is before..... back in December 2015

Ugh, it just looks painful to look at this photo.  This is days before my breast explant. Sweet's Syndrome in all it's glory on my chest and face.  Mind you, I had these sores all over my body too.

Ugh, it just looks painful to look at this photo.  This is days before my breast explant. Sweet's Syndrome in all it's glory on my chest and face.  Mind you, I had these sores all over my body too.

And then more recently.....

April 2016 - no steroids, no antibiotics, no pharmaceuticals of any kind.

April 2016 - no steroids, no antibiotics, no pharmaceuticals of any kind.

So yes, there are a few spots here and there.... but can you BELIEVE the difference?!  Proof that something I'm doing is working, right?

 

Now onto MDS updates.  My primary physician tested me for heavy metals a few weeks ago and we received my results back. No, my blood's not rocking out to heavy metal music, though it should be!! (*head bangs*)  I have toxic levels of Mercury and Cadmium in my blood. (So actually my blood IS rockin' out to the heavy metals, but it's not as cool as it sounds) We did this test unprovoked, meaning I did not take anything to draw the metals out and dump them in my blood to register on the test.  This was just a sitting blood test.  Can you imagine if we provoked it!?  My levels would be of the chart.

Needless to say, these results are not good BUT it does reveal something shocking.  Mercury can lead to MDS.  It's listed as one of the causes.

I've since begun a metal detox to help get this junk out!

I'm also on the hunt for a new oncologist, an integrative one, hopefully.  When I spoke with my dermatologist last, he mentioned that he had spoke to my oncologist. (The oncologist, dermatologist, and my primary physician have all been discussing/covering my issues so they can bounce off one another)

So the oncologist has said no to any treatment the dermatologist presented, because most will modulate my immune system too much.  The derm did say that IVIG (IV immunoglobulin) may be a great treatment for the Sweet's.  Onco says no.  He proceeds to tell the derm to "just put her on Dapsone and give her Neupogen for her red cells which will drop."

Dapsone is an anti-biotic that has shown to help Sweet's.  So what's the problem here?  Well, if the oncologist took a second to even open my file, he'd see in several places that I'm highly allergic to Dapsone or any sulfa drug for that matter.  REALLY?!  He can't even look at my file before telling another doctor how to treat me?

Done with him. Thanks for the 2 visits, doc.

Anyways, the journey continues....

 

Purely,